Martha Apolot navigates a rugged path in Owalai, Uganda, carrying her eight-year-old son, Aaron, on one shoulder while balancing a hoe on the other. The 21-year-old single mother takes Aaron with her daily to the fields where she works on agricultural tasks. With a quiet disposition, Martha describes her responsibilities, noting, “Aaron is so weak, so I have to carry him from the house and lay him somewhere so I can work.” The small, single-room hut they call home reflects their struggles, as they return only when it is necessary for feeding or changing Aaron, who has an undiagnosed disability that limits his mobility and communication.

Personal Trauma and Resilience

Martha’s life took a tragic turn at the young age of 13, when she was raped by a stranger. Facing rejection from her family, she initially sought refuge with friends before reuniting with her older brother Paul, who offered her support. Her return home, however, was met with further isolation. “Only Paul has stood by me and brought me food,” she states, reflecting on the limited support she has received. After enduring a long, complicated delivery that resulted in an emergency caesarean section, Martha’s initial joy upon seeing Aaron was soon overshadowed by concerns about his health. Doctors warned her of potential complications, leading to the recognition of Aaron’s disabilities within months.

Enduring Stigma and Neglect

The societal stigma towards disabilities in Uganda adds another layer to Martha’s hardships. Many families view disabilities as burdens, leading to individuals being shunned or hidden. Martha experienced this firsthand and faced disdain at markets and hospitals, where people questioned her decision to bring a child like Aaron into public spaces. “I began to think about throwing him away when I was around 15,” she admits, grappling with despair. It was not until she attended therapy sessions at a local hospital that she found encouragement from others in similar situations, helping her reconnect with the love she once felt for her son.

Daily Life and Struggles

Martha’s daily routine begins at sunrise, caring for both herself and Aaron. She prepares liquid meals and feeds her son with care. Despite the bleakness of their circumstances, she earns approximately 15,000 Ugandan shillings (about $4) weekly through agricultural labor. This income barely suffices to purchase essential items, yet she saves diligently for medical emergencies, which are frequent due to Aaron’s ongoing health issues. Martha recalls a particular incident where she rushed Aaron to a local health center before making a lengthy trip to a hospital for urgent care. “I have fought for the life of this child many times,” she reflects, revealing the depth of her determination.

A Bond of Love and Hope

Through the years, Martha developed a profound bond with Aaron, finding joy in their interactions. The simple moments spent together, such as bathing him or playing games, bring happiness and light into their lives. She elaborates on the significance of these moments, saying, “Whenever I am playing with Aaron, I know that Aaron is enjoying it when he smiles back at me.” Martha’s commitment to being a supportive and loving mother keeps her resilient despite the ongoing challenges posed by societal attitudes and their living conditions.

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